Helping Families and Caregivers of Special Needs and Down Syndrome Children

Families caring for children with special needs, suchothers, may be embarrassed or ashamed, thinking
as Down syndrome, face tremendous obstaclesthat they should be able to handle it on their own,
and challenges, yet they exhibit extraordinaryor simply do not know where to turn.
courage that focuses on the care, nurturing andIf only a few people see and understand the
protection of their child that is special in so manyneeds of such a family, and come together to
ways.assist, they can bring tremendous relief in
Children, with any disabilities, require endless hoursunlimited ways. By educating a community, and
of attention: medical appointments, therapies suchworking together, a family with a special needs
as speech and/or occupational, hippo therapy,child will have less stress and more time to not
hospital visits, and/or surgeries. Parents andonly care for their child, but the entire family unit.
caregivers spend sleepless nights watching,Local clergies and parishes are considered
listening, comforting and worrying.caregivers, and have vast resources and abilities
However, add to those responsibilities the normalwhich can bring financial, emotional, and spiritual
routines of life, and we can imagine thesupport. Fund raisers, such as bake sales, may
tremendous affect on every family member innot only supply financial relief, but also bring
the home.awareness to other individuals and businesses
The hours of care may mean that siblings will notlocally, creating more resources that can benefit a
always have immediate needs/and or wants met.family in need.
Mom or dad may miss games, practices, recitalsLocal high schools may have teens that are willing
or bedtimes. Daily responsibilities, such as laundry,to offer child care, outings to local parks or trips
cleaning, and cooking may not get done, or mayto the library. Others may offer lawn care and
be dispensed among older children, while youngersimple maintenance work to ease the upkeep of
children may feel neglected, scared or confused.the home. Individuals who enjoy garage and yard
The expenses and the financial means (or lack of)sales, can bring entire neighborhoods together,
may be overwhelming. Insurance may bedonating the proceeds to the family. Many more
insufficient to meet all the medical needs. Secondmay supply items. Those that enjoy cooking may
mortgages may be needed and life-savings mayband together and offer weekly meals, while
be wiped out to make sure that every necessaryothers may offer to shop, clean or provide rest
treatment, surgery and the best possible care isto an exhausted caregiver.
provided. Days that seemed short beforeBy understanding the needs of those with these
suddenly run together when the responsibilities ofextraordinary circumstances, willingly offering skills,
running a home and the immense strain, concerntalents and time, and educating those around
and care of a special child collide.them, a community can participate in the care
Seeking help outside of the immediate realm ofand well-being of a member of their own family:
friends and family are often times difficult fortheir neighbor.
these families. Many do not want to impose upon