What Does Awareness Really Mean in Relation to Down Syndrome?

Understanding Down Syndrome, the effect is hasventricular septal. Both increase the risk of early
on those with the disorder, and the families itdeath. (See for article) And many will require
impacts, is something few can attest to.surgery in early infancy according to the Mayo
Society may only see a child with specificClinic.
features, such as a flattened nose, smaller earsNearly 2% of Down syndrome children will be
and eyes, and the probability of some degree ofdiagnosed with Acute Lymphocytic Leukemia
mental retardation. But, the disorder has more(ALL), which affects the lymphoid white blood
than just a few visual characteristics that set itcells, or, Acute Non-lymphocytic Leukemia (ANLL),
apart from other disabilities.a fast moving cancer that affects the myeloid
Creating an awareness of Down syndrome as awhite blood cells. The children with ALL have
whole disorder and how it affects not only theresponded better to treatment, however, the
individual with it, but those that love and care forcure can be as deadly as the disease.
them is important. But, what is awareness? WhatThis disorder increases the susceptibility to
does it mean in relation to this disability?infections as well. Ear infections and pneumonia
Merriam-Webster dictionary defines the wordrisks are greater. Intestinal problems and/or
aware as: "vigilance in observing or alertness inabnormalities, hearing and/or vision impairments or
drawing inferences from what one experiences."loss are also not uncommon.)
Explained: watch to avoid the danger of passingAwareness means that each child, and their
statements or judgments as true from thefamily, faces battles daily. Some are easier to
experiences of others. Simply put: Just becauseovercome than others. Some cannot be
one child with Down syndrome moves intoovercome at all.
adulthood with minimal complications, does notWith this knowledge, those in positions to be of
mean that all will do so.service to the family, give consolation, or just
Nearly 50% of children with Down syndromeoffer shoulders of support can bring the
have heart defects such as atrial septal orawareness of hope to those that need it most.